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A síndrome tetra-amelia é uma condição genética extremamente rara, caracterizada pela ausência dos quatro membros. Ela pode vir acompanhada de outras alterações no desenvolvimento, e cada criança que nasce com essa condição é única em sua forma de existir e enfrentar o mundo. Mais do que uma síndrome, é uma história de coragem, amor e superação. #tetraamelia #sindrome #pierrerobinsyndrome #luto #filha
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