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Oi! Meu nome é Mariele e tenho retinose pigmentar. Conviver com a baixa visão muda muita coisa na minha rotina — mas nunca me impediu de viver com intensidade. Criei esse espaço pra mostrar meu dia a dia com alma: superações, descobertas e momentos reais. Porque ver o mundo vai muito além dos olhos. Se quiser entender mais sobre esse universo invisível pra muitos, mas tão real pra mim… vem comigo. #EnxergoComAlma #RetinosePigmentar #BaixaVisão #VidaComDeficiência #inclusaocomamor❤️🤝💙
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Janaina Barcelos é jornalista, palestrante, presidente fundadora do Instituto Holofotes, portadora de retinose pigmentar, nominada pela Academia Brasileira de Ciências, Artes, Historia e Literatura como embaixatriz do diagnóstico precoce de doenças degenerativas da visão, no Brasil. Foi premiada pelas Câmaras de São Paulo, Belo Horizonte e outras cidades do país pelos relevantes serviços para a sociedade, informando sobre a importância do diagnóstico precoce de doenças visuais. Miss São Paulo 2
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