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Pedro tem Duchenne, uma doença rara que enfraquece os músculos e tira seus movimentos. Ele já não anda mais, mas ainda consegue segurar o controle do videogame – e essa é a única coisa que ele ainda pode fazer sozinho.
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❤️ DE CORAÇÃO, LIBERA O ELEVIDYS. ⏳ Tempo é vida. Na Distrofia Muscular de Duchenne, cada dia sem tratamento é força que se perde, é movimento que diminui, é futuro que se encurta. O Elevidys é hoje a única terapia com potencial de mudar o curso dessa doença. Nos Estados Unidos, foi retomado com critérios técnicos atualizados. No Brasil, segue suspenso. Nós respeitamos o rigor técnico. Mas essa reavaliação precisa ser prioridade. Porque não estamos falando de burocracia. Estamos falando de crian
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