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Ajudando a Thalia a voltar para casa! Oie, pessoal! Meu nome é Thalia e eu tenho 11 anos. A 1 ano e meio atrás fui diagnosticada com síndrome de Arnold-Chiari, que é uma doença rara . Já fiz duas cirurgias para descomprimir a medula. Da primeira vez eu me recuperei super bem, mas depois da segunda cirurgia eu infelizmente tive lesões mais graves. Eu perdi todos os movimentos do corpo e também perdi a musculatura do pulmão. E, como não tenho mais força para respirar, dependo totalme
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lembranças da cirurgia em 2019 cranioestenose Sutura Metopica síndrome de Arnaldo chiari tipo 1
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