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Você acordou cedo, saiu fazer exames, comprou remédio, voltou para o trabalho, limpou a casa, fez comida pra sua família e ouve a famosa frase. " NOSSA NEM PARECE QUE VOCÊ ESTÁ DOENTE"😒 Você não entenderia oque algo simples nos custa. Dor, falta de ar, formigamento, taquicardia, fadiga intensa e eu nem vou falar da culpa por nunca estar bem e depender dos outros... Enfim doenças Raras e invisíveis. #doencarara #Porfiria #doencaautoimune #anemia #doença
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Nem toda doença tem marcas aparentes, as mais difíceis de diagnósticar deixam as marcas mais profundas. Medo, dúvida, perguntas, questionamos os próprios sintomas os exames não mostram o motivo por trás da dor e debilidade. se ninguém sabe o que você tem nem mesmo os médicos mas você continua não estando bem ...Não desista você não está sozinho pense PORFIRIA #PORFIRIA #DOENCASRARAS #testemunho #doencagenetica #doencaautoimune
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